What is the Emory Cleft Project?

The mission of the Emory Cleft Project is to learn about the causes and outcomes of orofacial clefting Orofacial clefts (OFCs), which include clefts of the lip and/or palate, are common birth defects that require a range of surgical and dental interventions. Although care has improved over the last several decades, the burden of these treatments can take a toll on families. We hope that our research will increase our knowledge of the causes of OFCs and will have long-term impacts on improved prevention, treatment, and prognosis for individuals and families affected by OFCs.

Is the Emory Cleft Project conducting any research studies? Yes! They are looking for study volunteers with a medical history of cleft lip and/or cleft palate, their parents, and any other affected family members, for a research study about genes that may contribute to clefting. Participation includes online surveys about family and medical history and DNA testing. Local participants will have photos taken. Volunteers will be compensated for their participation.

Who can be a part of this study? Individuals with cleft lip and/or cleft palate and their family members.

What are the benefits? This study is designed to learn more about the genetics of Orofacial Clefting and craniofacial differences. The study results may be used to help others in the future by improving diagnosis or treatment for such conditions.