What is Born a Hero? The goal is that BORN A HERO will confront the world with hope, courage, and love. BORN A HERO is here to fight for change. Our mission is to accelerate innovation and research to improve the quality of life for patients with FGFR Syndromes, including Pfeiffer Syndrome.
What is the Rare Disease Fair? The Rare Disease Fair is an event where rare disease advocates, rare disease organizations, researchers, doctors, pharma, biotech, academia, policy makers, and payers collaborate. Because all parties involved are important. Together we are stronger and can accelerate research and innovation.
The Rare Disease Fair is an opportunity to educate, discuss, learn, create awareness, network, and take actions. But we do this in a fun and Festival atmosphere.
The ultimate goal of the rare disease Fair is to educate researchers on different rare medical conditons with the hope that they will incorporate a rare disease into the research that they are already pursuing. This will serve as a bridge between the rare disease organizations and the researchers. Since one of the biggest issues for the rare disease community is to fund research and to find researchers.
Craniofacial Care at NYU Langone Health.